Empowering Everybody, in Every BODY, Everywhere!
Empowering Coaching, Support Groups, Classes, Advocacy & Speaker Events!
We're here to EMPOWER our Healthcare Communities with Unique Support Groups, Coaching, Advocacy & Keynote Speaker Events!
Welcome to EveryBody Empowered, LLC!
Our Mission
EveryBody Empowered, LLC is a company centered around Diversity-Equity-Inclusion-Accessibility, committed to the development of empowering and innovative solutions for everyone within our healthcare, rare disease, chronically sick &/or disabled communities; with the goals of bridging all healthcare stakeholders through our support groups, coaching, advocacy, and keynote speaker events; cultivating resilience, empowerment and evolution for individuals and organizations, as well as participation in bipartisan legislative advocacy to improve rare disease & chronic illness patient outcomes, increase & improve research, drug development and accessibility.
Our Philosophy
We believe that everybody, in every BODY, deserves to be empowered! We believe that everyone, every body (no matter how rare) deserves to be equitably empowered to become their best selves. It is our philosophy that everyone and all of our individual "bodies" (mental, social/emotional, physical and spiritual) require nourishment and empowerment to make our human experience as healthful and fulfilling as possible. For people living with rare diseases, chronic illnesses and disabilities, finding balance, overcoming adversity, and figuring out tasks of daily living, quality of life, and the nuances or intersections of life can be challenging. Healthcare providers are able to assist with the medical/physical components involved with a diagnosis and treatment plan. But what about all the other ways having an illness or disability affects you/the patient’s life? Relationships, Family, Career, Finances, Housing Security, Healthcare Navigation are just a few things that get impacted by having a RD/CI/Dis, and yet support, education, advocacy and resources may be lacking. Also, often left out of the picture are our Caregivers and Healthcare Workers who need support too! We are here for all of you seeking empowerment and resilience. This is where we shine for YOU, like a star in the night! EveryBody Empowered is here to provide you/the client with meaningful support groups, coaching, advocacy, and educational support that can help you learn, find resilience and empower your own mental, social/emotional, physical &/or spiritual health as you navigate your path ahead. In addition, to providing adult support groups and coaching services, we also offer our services to Teens, and Pediatric Patients are coming soon!
What We Do
EveryBody Empowered provides Keynote Speaking, Rare Disease Advocacy, Support Groups and Coaching (which includes Support Groups for Patients, Caregivers, Healthcare Workers and Others, Patient Advocacy Coaching, Couples Coaching, 1:1 Individual Coaching, Teens (age 14-20), and Customizable Coaching). We also offer Retreats, Seminars & Workshops for individuals, couples & groups from diverse backgrounds seeking accessible, equitable & empathic coaching for everybody (especially those with Rare Disease(s), Chronic Illness(es) &/or Disabilities), who want to develop their resilience and empowerment. We are here to help anyone seeking compassionate coaching & support to overcome adversity.
In addition to our varied services, we are looking forward to collaboration and developing projects with other Rare Disease / Chronic Illness / Disabilities & Patient-focused Organizations, Institutions, and Healthcare Communities. We are also open to partnerships with Schools and Youth or Student-Centered Organizations and Institutions to provide our Empowering Youth Coaching Program, Support Groups and Workshops. Contact us with your inquiries, info@everybodyempowered.com.
We Currently Offer:
SPEAKER EVENTS
KEYNOTE SPEAKER / GUEST SPEAKER
HOSTING / MODERATION
TRAINING FACILITATION
LECTURES / WORKSHOPS / SEMINARS
COACHING
SUPPORT GROUPS (virtual, hybrid, or in-person/NYC-area)
THEMED GROUPS (virtual, hybrid, or in-person/NYC-area)
COUPLES / POLY PARTNERS (virtual, or in-person/NYC-area)
INDIVIDUAL (1:1) COACHING (virtual or in-person/NYC-area)
PATIENT ADVOCACY COACHING (1:1 and Groups // virtual, hybrid or in-person/NYC-area)
FAMILIES (with Rare Disease Patients & Caregivers // virtual, hybrid or in-person/NYC-area)
YOUNG ADULT COACHING (1:1 and Groups, ages 14-18 years old // virtual or in-person/NYC-area)
CUSTOMIZABLE GROUPS
WORKSHOPS
RETREATS
Empowering Coaching Retreats in AMAZING (& Accessible) Destinations in the USA and Internationally!
CUSTOMIZABLE Empowering Coaching, Educational &/or Professional Development Retreats (Weekends & Staycations too!), available for Groups of 5 people or more.
WORKSHOPS & SEMINARS
Exciting Workshops & Seminars on a variety of topics, TBA
CUSTOMIZABLE for Groups, Organizations/Institutions, Companies, and Professionals
RARE DISEASE / CHRONIC ILLNESS / DISABILITIES ADVOCACY
EveryBody Empowered, LLC helps educate, advocate and raise awareness for people living with Rare Diseases. There are over 7,000 different rare diseases impacting over 25,000,000 people in the United States alone. EveryBody Empowered specializes in particular rare and/or autoimmune, chronic &/or disabling diseases/conditions that its CEO/Founder, Aimee Zehner, continues to battle:
- the rare neuromuscular disease known as Generalized Myasthenia Gravis (gMG) and its ultra-rare serotypes such as LRP4, and the Seronegative gMG population
- the common yet often-misdiagnosed/under-diagnosed, misunderstood, systemic, autoimmune disease called Sjögren's Disease (previously known as Sjögren's Syndrome)
- the rare, gastrointestinal, autoimmune or idiopathic, digestive disease known as Gastroparesis (GP)
- the rare disorder of blood vessels called Raynaud's Disease (aka Raynaud's Phenomenon)
- the common autoimmune thyroid condition Hashimoto's Thyroiditis
- the common autoimmune, endocrine disorder Polycystic Ovarian Syndrome (PCOS)
- the common, autoimmune, metabolic disorder Diabetes Mellitus
- Post Concussion Syndrome (PCS) and mild Traumatic Brain Injury (mTBI)
Please check out our individual "Advocacy" pages for Myasthenia Gravis, Gastroparesis and Sjögren's Disease. Check out our "Other Advocacy" page to learn more about the other conditions, find resources and to connect with us regarding advocacy matters!
EveryBody Empowered participates in advocacy for other rare diseases and neurologic disorders such as other types of muscular dystrophy like ALS, CMT, LGMD, neuropathy, Alzheimer's/Dementia, other systemic & rheumatological disorders such as Lupus, Scleroderma, Sarcoidosis, MCTD and Arthritis, hematological disorders like Sickle Cell Anemia, cardiac disorders, endocrine and reproductive disorders, and more! In addition, due to the loss of both Aimee's parents to cancers as well as other loved ones, we participate in advocacy about Non-Hodgkin's Lymphoma and other cancers.
We must be pro-active in our approach to healthcare, whenever possible!
EveryBody Empowered is open to collaboration and the creation of initiatives that positively impact the Rare Disease Community, as well as for those individuals living with chronic illnesses and disabilities. EveryBody Empowered is keenly interested in learning about and sharing information about up-and-coming rare disease research, drug development and clinical trails for rare disease patient populations. We are happy to host, co-host or participate in speaking events with guest physicians, specialists, researchers, professors, institutions, rare disease / patient advocacy organizations, drug developers and more. We support fellow advocates and organizations in rare disease research & fundraising initiatives. We are open to opportunities for potential partnerships. Let us help you on your path of professional development, education, transformation, and empowerment!
For Healthcare Professionals
EveryBody Empowered provides institutions, organizations, companies and professionals within our healthcare communities with up-to-date information and resources about Rare Diseases, and commonly misunderstood or misdiagnosed diseases such as Sjögren's Disease. We also provide patient advocacy, education and resources, and inspiration for rare disease, chronically sick and/or disabled patient populations. In addition, we offer a range of specialized and customizable topics to help improve healthcare institutions and provider practices, to improve patient outcomes.
We are actively seeking organizations and institutions interested in collaborating to provide our Empowering Coaching services for your patient populations. Please contact us with your inquiry to discuss potential opportunities.
EveryBody Empowered is available for Consultation, Keynote Speaker Engagements, Guest Host and Event Moderation, Lectures/Workshops, Professional Development, Webinars, Conferences, Symposia, Corporate Events, Expos, Summits, Roundtable Discussions, Fundraising Events, Focus or Breakout Groups, Support Groups, Group and Individualized Coaching, Seminars, Retreats, and more.
We are open to NYC (local), statewide, national and international events, pending details and availability. Please contact us with your Booking Request or General Inquiry to discuss how we can be of service in your empowerment.
We are proud to announce the start of our "HEROES WITHOUT CAPES" Healthcare Workers Support Groups for Mental/Emotional Health, Healing & Wellness. Working with patients in Healthcare presents unique challenges, stress, and emotional complexity different from what is experiences in other careers. Healthcare Workers can benefit from the mental & emotional support of others in healthcare, with the added benefits of coaching to enhance the cathartic experience of our support group. This is a space to vent, share, learn, heal and grow. This group is specifically dedicated to Healthcare Providers of all kinds (from MDs to RNs, NCPs, Nurse Attendants, LMSWs, LMHCs, OTs, PTs, RTs, Med Techs, PCAs & more).
We are also now offering "THE CAREGIVERS CIRCLE" Support Groups for anyone who is a caregiver of patients with rare disease / chronic illness / disabilities. This group is open to parents/guardians, HHAs, PCAs, spouses or significant others, family members, friends-- anyone that is providing care for an individual or individuals that have a rare disease, chronic illness &/or disability. Share in mental/emotional support with other caregivers, share experiences, vent, learn, grow and heal.
And finally: *PATHWAYS TO PEACE* Post-Pandemic Support Group (Virtual; Open to EveryBody, especially Healthcare Workers; for support and a safe space to promote healing in overcoming grief, trauma, stress, and other mental/emotional health issues related to the Pandemic and its aftermath.)
DISCLOSURE: EveryBody Empowered, LLC and Aimee Zehner provide support groups, coaching, advocacy & speaker events. EBE and Aimee Zehner are NOT medical, psychological, psychiatric or physical healthcare providers. We do NOT provide medical advice, diagnoses, treatments, or medications. We do not provide clinical therapy. Our Support Groups & Coaching do NOT replace 1:1 Therapy, and we recommend our Support Groups / Coaching Services in addition to any therapy you are currently attending, or planning to attend. We do not provide legal services or advice. We encourage all clients to consult with their providers regarding their overall health & wellness, physical/mental/emotional &/or medical care needs &/or decisions. Please contact 9-1-1 for Emergency Care Services, or go to your nearest Emergency Room in the event of an emergency.
For Patients with Rare Diseases, Chronic Illnesses &/or Disabilities; Caregivers, Healthcare Workers & More:
EveryBody Empowered provides advocacy, support groups and coaching services for individuals and groups from diverse backgrounds seeking equitable & empathic coaching for everybody and every "body." We provide meaningful coaching that can help you empower your mental, emotional, physical and/or spiritual bodies as you navigate your path ahead. We provide support, education, resources, a safe place to be heard and to heal. To gain self-awareness, learn healthier coping strategies, improve self advocacy, and work on any issues/aspects that need empowering. We can help you restore your resilience.
We can't always change our circumstances, but we CAN change our perspective, empowering our lives in-the-NOW! Mindset is so important in managing chronic illness or disabilities.
SUPPORT GROUPS & COACHING
Our groups have members joining from diverse backgrounds from all over the world. EBE's Coaching & Support Groups are designed in a way that allows group members to get what they personally need from the group experience, while empowering one another, no matter where they are on their coaching journey and life path.
All Support Groups and Coaching Groups are private, confidential and intended for adults who are 18 years of age or older, unless stated otherwise. Our Empowering Women's Support Group, is for women only, and open to those who identify as female. We support people who are LGBTIQ/NB, BIPOC, Chronically Sick, Disabled, and more. EveryBody Empowered is a safe space for everyone to coexist peacefully, with the tenets of DEIA (Diversity, Equity, Inclusion, Accessibility) in mind.
VIRTUAL Healthcare Community Support Groups:
*THE EMPOWERED WARRIORS* Patient Support Group (for Patients with Rare Diseases, Chronic Illnesses or Disabilities)
*THE PHOENIX PATIENT COLLECTIVE* Rare Disease Patient Support Group (only for Patients living with Rare Diseases)
*HEROES WITHOUT CAPES* Healthcare Workers Support Group (for Healthcare Workers Only)
*THE CAREGIVERS CIRCLE* Support Group (open to parents/guardians, HHAs, PCAs, spouses/significant others, grown-children, family members, friends-- anyone providing care for 1 or more patients that have a rare disease, chronic illness &/or disability)
*THE SUPERHEROES SQUAD* Teen Patient Support Group (for Teen Patients ages 14-18 years old, who have Rare Diseases, Chronic Illnesses &/or Disabilities)
SUPPORT FOR PEDIATRIC PATIENTS - COMING SOON:
Pediatric Patient Support Group (for children ages 5-10, and 11-13 years old, who are Patients with Rare Diseases, Chronic Illness or Disabilities. See our Support Groups page for more info. Groups will become available virtually and in-person, TBA. PLEASE EMAIL US IF YOU ARE INTERESTED IN THESE GROUPS FOR CHILD PATIENTS at info@everybodyempowered.com ).
THEME-FOCUSED SUPPORT GROUPS:
*WORTHY OF LOVING* [The Art of Sex, Love & Dating for the Chronically Sick &/or Disabled] (for Patients with Rare Diseases, Chronic Illnesses &/or Disabilities to cultivate self-love, get support and coaching to create the dating, sex & love life you desire--while being chronically sick &/or disabled!)
*PATHWAYS TO PEACE* Post-Pandemic Support Group (Virtual; Open to EveryBody, especially Healthcare Workers; for support and a safe space to promote healing in overcoming grief, trauma, stress, and other mental/emotional health issues related to the Pandemic and its aftermath.)
*GROWING THROUGH GRIEF* Support Group (Virtual; Open to EveryBody; to help you move through the stages of Grief, heal and process any significant loss.)
*ROADMAP TO RESILIENCE* Coaching Group (Virtual; Open to EveryBody; to help you heal and find your path forward into resilience after experiencing trauma, loss or other life events.)
*THE EMPOWERING SISTERHOOD* Women's Support Group (In-Person - meets in NYC; For Women-Only; ages 18+) to provide support, encouragement, guidance, ancestral maternal guidance, and overall women's empowerment.}
OTHER COACHING SERVICES:
Our coaching services specialize in people living with rare diseases, chronic illnesses, and disabilities. We offer one-of-a-kind support groups, for patients, caregivers and healthcare workers. We have customizable coaching for individuals and groups around a range of topics such as resilience, overcoming grief, self acceptance, body positivity, sexuality, dating, relationships, reimagining your identity, and much more. We also offer Workshops, Seminars and Retreats that can be customized to meet your individual or personal group's needs.
For Rare Disease / Chronically Sick Patients (and groups/orgs), we offer Patient Advocacy Coaching Groups & Workshops which guide patients on a range of needs and topics such as: collecting & organizing medical records, preparing for appointments, how to conduct appropriate medical research, the diagnostic odyssey and how to get correctly diagnosed, coming to terms with a diagnosis, finding quality medical providers, finding the right Specialist, how to communicate effectively with providers, navigating charting websites for patients, help with researching &/or understanding your diagnosed medical conditions, treatments and/or medications, home-health care, and more! Please check out our Coaching, and Workshops pages to learn more about our current offerings. To request an Advocacy/ Coaching session, please contact us. For info about our Keynote Speaker Events, please check out our Speaking webpages.
DISCLOSURE: EveryBody Empowered, LLC and Aimee Zehner provide support groups, coaching, advocacy & speaker events. EBE and Aimee Zehner are NOT medical, psychological, psychiatric or physical healthcare providers. We do NOT provide medical advice, diagnoses, treatments, or medications. We do not provide clinical therapy. Our Support Groups & Coaching do NOT replace 1:1 Therapy, and we recommend our Support Groups / Coaching Services in addition to any therapy you are currently attending, or planning to attend. We do not provide legal services or advice. We encourage all clients to consult with their providers regarding their overall health & wellness, physical/mental/emotional &/or medical care needs &/or decisions. Please contact 9-1-1 for Emergency Care Services, or go to your nearest Emergency Room in the event of an emergency.
Advocacy / Coaching Sessions Available
For Keynote Speaker / Professional Events
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EveryBody Empowered, LLC - Disclaimer
All content found on this website [everybodyempowered.com] is for informational purposes only, and is subject to change. EveryBody Empowered, LLC does its best to provide up-to-date and reliable content (such as information, links, resources), but we can not predict when changes will occur that require us to update / change or remove content from our website. Sometimes scientific, medical or world discoveries are made that changes what we thought we knew (such as a new theory, disease causation, a law, or societal norm). Also, "cancel culture." We will do our best to learn about and reflect necessary changes in the content we provide, AND in who or what we recommend or support as resources. We apologize for any inconvenience this may cause. Please notify us by email if you notice any content that requires attention or updates, or content that goes missing that you were hoping to save, or that you think should be added. Content on our website is subject to change at our discretion. Also, please remember that EveryBody Empowered, LLC and Aimee Zehner do NOT provide medical, psychological, health, financial or legal advice, or therapy. EveryBody Empowered, LLC and Aimee Zehner do NOT provide diagnosis, diagnostics, treatments, medicine, medical, financial or legal services. EveryBody Empowered, LLC website content / information is not intended to replace content / information found on reputable primary sources (such as the official websites for The United States National Institutes of Health / NIH, or National Organization for Rare Disorders / NORD), or from your own providers or licensed professionals. Please discuss all personal medical or psychological health, financial, or legal issues, questions or concerns with your own healthcare team, appropriate licensed provider or professional. Thank you.
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