EveryBody Empowered, LLC

Empowering Everybody, in Every BODY, Everywhere!

Signed in as:

filler@godaddy.com

Account

Empowering Coaching, Support Groups, Classes, Advocacy & Speaker Events!

Rare Disease Advocacy to Empower EveryBody

Our Mission in Rare Disease Advocacy

Aimee Zehner joined the Rare Disease Community when she began her medical journey in trying to get diagnosed for symptoms that her regular doctors couldn't quite figure out.. Aimee Zehner founded EveryBody Empowered, LLC as a company committed to the development of empowering and innovative solutions for everyone within our healthcare, rare disease, chronically sick and disabled communities, with the goal of improving patient outcomes, bridging healthcare stakeholders through education, advocacy and coaching; cultivating resilience, metamorphosis and evolution for individuals and organizations. Here at EveryBody Empowered, we believe that Everybody & every BODY deserves to be empowered! We believe that everyone, every body (no matter how rare) deserves to be equitably empowered to become their best selves. It is our philosophy that everyone and all of our individual bodies (mental, emotional, physical and spiritual) require nourishment and empowerment to make our human experience as healthful and fulfilling as possible.

EveryBody Empowered helps educate, advocate and raise awareness for people living with Rare Diseases. There are over 7,000 different rare diseases impacting over 25,000,000 people in the United States alone. EveryBody Empowered specializes in particular rare and/or autoimmune, chronic &/or disabling diseases/conditions that its CEO/Founder, Aimee Zehner, continues to battle:

the rare neuromuscular disease known as Generalized Myasthenia Gravis (gMG) and its ultra-rare serotypes such as LRP4, and the Seronegative gMG population
the common yet often-misdiagnosed/under-diagnosed, misunderstood, systemic, autoimmune disease called Sjögren's Disease (previously known as Sjögren's Syndrome)
the rare, gastrointestinal, autoimmune or idiopathic, digestive disease known as Gastroparesis (GP)
the rare disorder of blood vessels called Raynaud's Disease (aka Raynaud's Phenomenon)
the common autoimmune thyroid condition Hashimoto's Thyroiditis
the common autoimmune, endocrine disorder Polycystic Ovarian Syndrome (PCOS)
the common, autoimmune, metabolic disorder Diabetes Mellitus
Post Concussion Syndrome (PCS) and mild Traumatic Brain Injury (mTBI)

Please check out our other "Advocacy" pages to learn more about these conditions and to connect with us regarding advocacy matters!

EveryBody Empowered participates in Legislative Advocacy, to educate, share information and patient perspectives with US policymakers and stakeholders regarding legislation that impacts the Rare Disease / Chronically Sick & Disabled communities.

EveryBody Empowered participates with other organizations in advocacy for other rare diseases and neurologic disorders such as: other types of muscular dystrophy like ALS, CMT, LGMD and Neuropathies, other systemic & rheumatological disorders such as Lupus, Scleroderma, Sarcoidosis, MCTD and Arthritis, hematological disorders like Sickle Cell Anemia, cardiac and related disorders such as tachycardia, Costochondritis and POTS, endocrine disorders like Addison's Disease and Hashimoto's and reproductive disorders like Uterine Fibroids and Endometriosis, Genetic Disorders and more. In addition, due to the loss of both Aimee's parents to cancers as well as other loved ones, we participate in advocacy about Non-Hodgkin's Lymphoma and other cancers.

We must be pro-active in our approach to healthcare, whenever possible! Time DOES matter when it comes diagnostics & treatment options that improve patient outcomes.

We are open to collaboration and the creation of initiatives that positively impact the Rare Disease Community, as well as for those individuals living with chronic illnesses and disabilities. EveryBody Empowered is keenly interested in learning about and sharing information about up-and-coming rare disease research, drug development and clinical trails for rare disease patient populations. We are happy to host, co-host or participate in speaking events with guest physicians, specialists, researchers, professors, institutions, rare disease and patient advocacy organizations, drug developers and more. We support fellow advocates and organizations in rare disease research fundraising initiatives. We are also open to opportunities for potential partnerships, and facilitating coaching for your organization, company or institutions. Let us help you on your path of personal or professional development, education, resilience, transformation, and empowerment!

Listen to Aimee's powerful TEDx Talk here:

Aimee shares how her journey through incredible adversity delivered her rise in resilience, giving her the tools of self-advocacy needed to navigate the world of healthcare and overcome the burdens of proof and prejudice she faced with complex, chronic health conditions, injuries, and rare diseases. Aimee explores some of the biggest disparities in healthcare, specific barriers that get in the way of patient care, diagnostics and treatments, and how we can overcome these barriers.