Empowering Everybody, in Every BODY, Everywhere!
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Empowering Everybody, in Every BODY, Everywhere!
Empowering Coaching, Support Groups, Classes, Advocacy & Speaker Events!
About Us
The Mission & Founding of EveryBody Empowered, LLC
Our Mission
EveryBody Empowered is a company committed to the development of empowering and innovative solutions for everyone within our healthcare, rare disease, chronically sick and disabled communities, with the goal of improving patient outcomes, bridging healthcare stakeholders through education, advocacy, support groups, coaching, classes and keynote speaker events; cultivating resilience, metamorphosis, empowerment and evolution for individuals and organizations. Here at EveryBody Empowered, we believe that Everybody & every BODY deserves to be Empowered! We believe that everyone, every body (no matter how rare) deserves to be equitably empowered to become their best selves. It is our philosophy that everyone (and all of our individual bodies: mental, emotional, physical and spiritual) require nourishment and empowerment to make our human experience as healthful and fulfilling as possible. Empowering EveryBody, in every Body, everywhere!
EveryBody Empowered provides Coaching, Keynote Speaking, Workshops and Retreats for individuals and groups from diverse backgrounds seeking equitable & empathic coaching for everybody and every "body" (especially those who have Rare Disease(s), Chronic Illness(es) &/or Disabilities).
EveryBody Empowered helps educate, advocate and raise awareness for people living with Rare Diseases. There are over 7,000 different rare diseases impacting over 25,000,000 people in the United States alone. There are estimated to be 300,000,000 people living with rare diseases across the globe. EveryBody Empowered specializes in particular rare, autoimmune, chronic &/or disabling diseases/conditions that its CEO/Founder, Aimee Zehner, continues to battle:
- the rare neuromuscular disease known as Generalized Myasthenia Gravis (gMG) and its ultra-rare serotypes such as LRP4, and the Seronegative gMG population
- the common yet often-misdiagnosed/under-diagnosed, misunderstood, systemic autoimmune disease called Sjögren's Disease (previously known as Sjögren's Syndrome)
- the rare, gastrointestinal, autoimmune or idiopathic, digestive disease known as Gastroparesis (GP)
- the rare disorder of blood vessels called Raynaud's Disease (aka Raynaud's Phenomenon)
- the common autoimmune thyroid condition Hashimoto's Thyroiditis (Hypothyroidism)
- the common autoimmune, endocrine disorder Polycystic Ovarian Syndrome (PCOS)
- the common, autoimmune, metabolic disorder Diabetes Mellitus
- Post Concussion Syndrome (PCS) and mild Traumatic Brain Injury (mTBI)
Our Rare Disease Advocacy & Resources
Please check out our individual advocacy pages for Myasthenia Gravis, Gastroparesis and Sjögren's Disease which give details about the diseases, causes, signs/symptoms, diagnostics, treatments, clinical trials/drug development, research, support groups, patient orgs, and more.
We have our general Rare Disease "RD" Advocacy page that shares Aimee's active advocacy efforts. We have a Rare Disease Patient Resources page loaded up with all kinds of links to RD databases, programs, support and info from NORD, the National Organization for Rare Disaorders.
We have a Legislative Rare Disease Advocacy page with everything you need to join RDLA/EveryLife Foundation or participate in RD advocacy & raise awareness, or to get connected to individual disease organizations that can help you craft your legislative ask or one-pager. Check out our "Other Advocacy" page to learn more about the other conditions, find resources and to connect with us regarding advocacy matters!
EveryBody Empowered participates in advocacy for other rare diseases and neurologic disorders such as other types of muscular dystrophy like ALS, CMT, LGMD, neuropathies, Alzheimer's/Dementia, other systemic & rheumatological disorders such as Lupus, Scleroderma, Sarcoidosis, MCTD and Arthritis, hematological disorders like Sickle Cell Anemia, cardiac disorders, POTS/Dysautonomia, Fibromyalgia, endocrine and reproductive disorders, and more! In addition, due to the loss of both Aimee's parents to cancers as well as other loved ones, we participate in advocacy about Non-Hodgkin's Lymphoma and other cancers. We must be pro-active in our approach to healthcare, whenever possible!
We are open to collaboration and the creation of initiatives that positively impact the Rare Disease Community, as well as for those individuals living with chronic illnesses and disabilities. EveryBody Empowered is keenly interested in learning about and sharing information about up-and-coming rare disease research, drug development and clinical trails for rare disease patient populations. We are available for customized coaching and speaker events!
We are happy to host, co-host or participate in speaker events with guest physicians, specialists, researchers, professors, institutions, rare disease / patient advocacy organizations, drug developers and more. We support fellow advocates and organizations in rare disease research fundraising initiatives.
We are open to opportunities for potential partnerships. Let us help you or your organization on your path of professional development, education, transformation, and empowerment!
